Wednesday I went to see the lymphoedema physio to get a new sleeve ordered. My arm is at least 1 -2 cm bigger than last december. I also collected all the goodies from the occupational therapist - good job she is coming round to show me what to do as some of them look very confusing.
I came home to find mum doing the ironing and no children. I knew Woody was out to see a friend but AJ and Laura had been invited swimming with their best friends so that was nice.
In the afternoon, I went off to London to go to a 'Living With Secondary Breast Cancer Taskforce'. It was a long walk from the tube to Westminster central halls but there was food - hurray. It was a high tea really but I had to get the waiters to do my cream scone as I couldn't manage. I met up with lots of people I've met in the forums so that was great. The actual evening was satge managed despite Joan Bakewell's efforts. They would happily answer questions about keyworkers and stats but not about access to trials or how the postcode lottery is still in existence. Anyway, the best bit was a few of us went to the pub afterwards and had a good chat etc and was lovely to meet different people. Didn't get home till 1130 - only to find hubby being ill with upset stomach again. The whole place stunk. I had to sleep in Woody's top bunk which was a major achievement at that time of night and a pint and half of cider!!
So - thursday - it was pack hubby off to his mum's again!!!
I had a lunchtime meeting so mum took the kids to see Ratatouille and then I took the boys to the opticians and mum took Laura home. Woody's eyes have changed a bit so needs new preswcription and to use them more often. He chose exactly the same frame as last time as he didn't see the need for a different style!!!!! Sounds like his dad!!! AJ's eyes are Ok at the moment but needs to be seen in a year as has slight stigmatism.
Friday - We had lunch with mum in law which was lovely and then I saw the neurologist. As I suspected it was another hoop to jump through exercise ie had to see this consultant to get mri. He disagrees with the consultant who did the nerve/muscle conductive tests and thinks it is rads damage and I probably have got scar tissue that is squashing the medial nerve as the pain is less and my movement is better - only 3mm- but it has made a difference in that I can get dressed on my own now!! Problem is now got to wait for mri date which he is putting down as urgent but could be 2 -6 weeks away and then they need to find a specialist to interpret it as apparently very few people have experience of brachial nerve injury. You would have thought as this is the regional neuro unit, we would have one wouldn't you!!!
Anyway, got Ct scan on tuesday and results thursday which may or may not give a clue.
My chest was not getting better so saw the GP again after the neurologist who gave me more antibiotics.
By 5pm, I was feeling distinctly unwell and I think taking all my tablets was the final straw as I was very, very sick and then had very severe diarhoea - bet you're glad I told you that bit. I don't think I've ever been that ill with a stomach bug before and not helped by my chest infection. We called a doctor out but we didn't really understand his english. He gave me an injection which didn't help at all. Think I was last ill by about 4am by which time poor AJ had started being poorly so poor hubby didn't get to bed till 6am!! Both AJ and Laura both got it. Laura was least ill but still unwell. Now hope it skips Woody as supposed to be takingkids and friend to a play area tomorrow.Thank goodness for mum - she kept supplying me with dioralyte and was looking after the children. Hubby looked after AJ who was struggling to get to the loo on time. I just spent the day in bed and kept sleeping. Eventually, I went to sleep at 9am and slept for 14 hours - I only woke up cos the phone rung!!
Somebody has now taken the babysitting book away as I couldn't cope so big thank you to you. Mum in law and uncle and cousins have taken children to the cinema which is a big help and are giving them tea so have time to catch up and have peace!!!
Chest still bad - so will have to see what happens this week. Toe just as gunky!!!
Thnak you to those who have given me cd roms, hard copies. If any of you have any more especially of your family/friend groups would love to see them. I know I'm being fussy but if poss could I have it on CD Rom as computer is not working well on picture front!!
One of my friends has presented us with photos in the plastic wallet in the same way as we had our photos displayed in so thank you for that as well. That is not a hint - I'm running out of space for photos on the walls but have got plenty of room fopr CD roms!!
Guinea pigs are settling in well and now called 'snowdrop' - white fluffy one with a brown flash and 'lightening' - black and brown with a streak of white. Hubby just built a small run for them so we can keep them indoors as they are only 8 weeks old. they are so cute and getting used to us now.
I didn't realise I relied on my painkillers so much cos as I've missed 36 hrs, the levels ave dropped and my secondary in my spine really hurt toady but improving now I've started taking the tablets again. Just worried about my chest - it's so noisy and I'm coughing up so much! Doubt they'll see much other than infection on the ct scan!! Also, temperature still high!! Pleased the children are out - thank you for looking after them