Well, after these postings all at once I suppose I should get down to business and tell you what has been happening healthwise.
Wednesday, I eventually recieved a letter telling me to phone the hospital for my chest clinic appointment which I did but they could only offer an appointment in september as we are way inbetween times. the urgent referral was done at the end of June!!!
Thursday, I went to the chemo clinic and got seen reasonably quickly but had to wait as my blood test was not back. It was an interesting consultation as always - conflicting info again.
Tykerb is now not being reviewed for licensing till the end of November now - wondered why it had not ben in the news!!
The onc was pleased that the steroids were helping my breathing but wants me on only 1-2mg and I'm still taking 4mg at present so will have to cut that down slowly. Worried that I will lose my increased energy levels and I am so enjoying being able to have a normal day that I can wake up and can function at 8am and function all day until 1030pm. I do not want to go back to having to struggle to get up in the morning and spend all afternoon in bed and go to bed at 9pm. Although, I know I am rather manic and fidgety and can not concentrate for very long on anything at present so do need to cut down the steroids so that I'm not looking like I should be sectioned under the mental health act. I have to reread and edit my emails and postings or else I just go on forever and repeat myself and have all incomplete sentences so will have to reduce whilst I'm away. I know I'm all sped up as I've also lost 5lb in 3 weeks and I'm eating a lot. I've also got lots of bruising on my legs and my face and ankles are all puffy so that is not good.
Anyway, now just trying to pack etc. Have fun.