Well as I said last post my feet really suffered and I found it impossib; to walk for nearly a week. I got loads of blisters and my feet still look very red!!!
I went back to see my onc on the thursday as I was due to restart the chemo but he refused as he said my feet were still too bad. I felt very happy about that as I was feeling tired and my feet were so sore still. I was in and out in an hour but had to go back a week later at 1230pm.
That evening, it was the twins music evening and Woody did his first guitar solo of the Saints go marching in!!!He was so proud of himself and I was proud of him as he didn't look nervous. Unfortunately, I got very oveerwhelmed before the concert started by the sheer number of people, the heat and my painful swollen feet so people dashed around and very kindly bought me a special chair and another chair for a footstool so felt even more tearful after that!!! The other mum's wanted to know what was wrong but none can believe how ill I am because I do not look like a stereotypical cancer patient as I have hair, am overweight and have a good colour courtesy of Dove's summer Glow!! I got talking to a nice mum that I know Woody talks to and I told her the kids didn't know how ill I was but she obviusly told soemthing to my son as he came home the next day saying he didn't know I was dying! I was mortified and really upset this had happened. as Laura is still so upset at night, Woody did not want me to tell Laura so have not gone as far down the line with her or AJ. Have told the elsa what has happened and seen the social worker but still back out of telling them. i just want someone else to do it but of course, deep down I don't really want that. I know I must do this.
I spent most of the week very quietly and the weekend quietly apart from spending time with Woody practicing his magic tricks for the Beavers on the monday!!. We decorated his magic box and came up with a routine and a magic box. Hope it goes well!!
Poor hubby had to unblock the sewer again and then 2 days later as I was flushing the loo, the handle broke and even after detailed instructions I still couldn't work out how to flush the loo by lifting whatever it was!!!
I went out to Frankie and Benny's on tuesday night and had a lovely smokefree meal there. What a new lease of life this smoking ban has given me!!
I got a phone call about collecting the car on wednesday and a friend kindly took me up to the garage to collect it. However, there was a big scratch on the windscreen so they had to replace it and i came home in an automatic diesal sport astra. Interesting experince and not one I wish to repeat!! Eventually got the car delivered to me with extra petrol and a bunch of flowers!!
Woody was brilliant at the magic show even if the routine did last only about 15 mins. he was very confident and actually spoke loudly so was very pleased!!!
It had been AJ's last week in infsnt school so wednesday afternoon I sat through 1 and three quarters listening to a rendition of Little Red Hen. The singing and dancing was good and this time I could understand what AJ was saying but when he wasn't involved in the acting, he spent the time pulling off the paper tissue off the pig mask. He was a pig and we had been told to provide your child with a pink t-shirt and black trousers. This I did, feeling very sorry for my macho son, only to discover that the other 2 boy pigs were wearing white t shirts and they were teasing him about wearing a girls tshirt so went in and gave him a white one.
This week I've been back to work and went to my policy ratification meeting. Seem to be getting better at producing work which is accpetable to the meeting so pleased with myself.
Yesterday, I went to chemo with a different friend and one who has had a different sort of chemo. She was brillinatly supportive and looked after me really well so thank you.
I saw the registra who surprised me by saying that they are now 'recycling' chemos so could have a different sort of eeh chemos I've already had - hope my heart holds out that's the worry for me. She also suggested I have steroids as the sort of lymph spread I have causes inflammation so steroids might help. Have started this today so have been in a happy, buzzed up mood and it did help -well for about 3 hours. Good job I had them though as I had a very miserable time at the family planning clinic. i will spare you the details but it was not the doctor's fault as I know she is excellent, it was just my body misbehaving again!!! Anyway, the steroid induced euphoria was defnately a plus. However, this afternoon as I took the second dose, I was really restless so took half a lorazepam to bring me down to earth now!!
Apologise for the typos - using laptop with broken backspace button so will re-edit it another day when I have a functioning computer and a brain that is not fuzzed about with steroids and lorazepam. (have re-edited this now - wow -what a lot of typos -26.7.07)
Our meet up in Hayling Island has been postponed due to the wet weather and flooding so hope we can get together soon and hope we can meet next sunday with a different group of friends. I need to socialise to keep me distracted.
Sure I have other things I need to say but will do that another day - genetic testing springs to mind.
Hope you are all well and can understand this ramble and the typos!!
Kate